We have a special prayer request tonight. Levi makes a lot of noise when he breathes which is called stridor. It seems harmless but actually is a sign of him working hard to breath. This could either be a soft airway or stenosis which is a scarred airway from the vent. Either way Levi needs to grow out of it. The soft airway is the quicker fix. The stenosis is more likely to end in surgery. This issue is basically going to keep him from drinking from a bottle or getting off of his oxygen. Please pray that he will grow and grow out of this issue. If he were to need surgery we will end up right back at UNC. As good as the care is there we really dont want to go back. If we can join together in praying specifically for this that would be great!
I also couldnt resist showing Levi in his big boy crib for the first time.
Yay for Little Baby Levi :) It is a true answer of prayer when we look at these awesome picutres of him. It is so amazing seeing the updated pictures and how much he has grown:) Thank you so much for sharing them with us and again for the witness you are for our Father! It is truly our pleasure to pray for your little angel. We have faith that God is going to heal Baby Levi of this breathing problem and it will be in God's time. May you continue to feel God's presence in your lives each and every day. If you get wary at times, which is totally understandable, just take a look at this blog from beginning to end. We promise it will lift your spirits and remind you how AWESOME YOUR GOD IS:) God bless you and your family.
ReplyDeleteLove & Prayers,
I was told about your blog by sister. She has a friend of a friend that knows you. The reason my sister told me about you guys is because my daughter was born at 27 weeks. As I read over your posts the memories came flooding back. My heart aches for the three of you. I know how hard and just flat out exhausting all of this is. I know how the day that Levi will be discharged can seem so far off and how frustrating even the little set backs can be...especially when he gets really close to coming home! Our little girl will be 2 this summer and I cannot believe it! Her time in the NICU seems like a different lifetime
ReplyDeleteand yet somedays (like today, after reading your blog) it feels like we were
just there! After he comes home you'll blink and he'll be two! Just keep doing
what you're doing! You have relied on the Lord so much through all of this
and I admire you both for that! Just keep being there for your little Levi. We
lived 40 + minutes away from the hospital where our little girl was. Because of
the distance I wasn't able to be there as much as I would have liked and it
broke my heart. He knows when you're there and I know it helps these little
ones grow when their mommies and daddies are there! I know how taxing
this can be on your bodies, minds, and spirits but this will pass. He will be
able to come home eventually and your hearts will be fuller than you ever
could have imagined! Keep appreciating the little things! I read somewhere
that parents of NICU babies appreciate the little things in their childs life more
because of their experience in the NICU. For example, being able to dress
your baby, capturing the first picture of your baby with their eyes open, or just
the simple fact that your baby is eating and pooping as they should! My
prayers are with both of you and especially your little Levi! I hope things are
on the up from here!