Yeah I know this is pretty late and people were curious about how the Chapel Hill checkup went. It was actually last Thursday and everything checked out fine. He saw his Neuro team and all they really did was look at his shunt and measure his head. Every thing looks good and he goes back in two months. Then he saw ENT and they said he looks good to follow up in four months. His PT is still working on him with some tightness in his shoulders and calming himself. His upper body is behind also. Coming up he sees the eye doc to see if he needs baby glasses. Later in the month its the pulmanologist to see how he is doing with his lungs and oxygen requirements. Anjie and I do see progress here. I know alot of people want to know if he is on O2. He is but on the lowest settings and actually is fine off of it while sleeping. Please continue to pray for his progress that he will catch up to his age development.
