It really has been a rough couple of days so far. Its just so much change and so much busier. We have people coming by alot more to talk about Levi which is good. Its also different because we were pulled away from our giant support stucture and moved here where we virtually have none. We are having to rely on God's comfort more than ever. Its a whole new chapter He is forcing us to live out. We have to continue to trust that he will provide for our emotional needs apart from our friends and family. As Christians we always say He is all we need. Do we really believe that? Anjie and I are really getting tested in that respect. This may be much more trying in the end than anything we have experienced to date. Please pray for us!
The tap itself did go well and made a difference in his irritability. He was very touchy all day today though. Anjie & I felt strongly that his anemia was causing this. We have seen it in the past. The idea is to not give him blood unless absolutely neccessary. We want his body to learn how to make it on its own. In the end though the anemia can have the same symptoms as the pressure on his brain. The NP decided to transfuse him to end that speculation. Now if his syptoms continue tomorrow it will be more obvious that its the brain causing them. The neuro team did tell us if Levi needs another tap they will slate him for surgery. Please keep prayig for the fluid to not build. Pray for a good night and good day tomorrow. Levi was 4lb 2oz tonight.
Here are some pics of him in his new surroundings
The tap itself did go well and made a difference in his irritability. He was very touchy all day today though. Anjie & I felt strongly that his anemia was causing this. We have seen it in the past. The idea is to not give him blood unless absolutely neccessary. We want his body to learn how to make it on its own. In the end though the anemia can have the same symptoms as the pressure on his brain. The NP decided to transfuse him to end that speculation. Now if his syptoms continue tomorrow it will be more obvious that its the brain causing them. The neuro team did tell us if Levi needs another tap they will slate him for surgery. Please keep prayig for the fluid to not build. Pray for a good night and good day tomorrow. Levi was 4lb 2oz tonight.
Here are some pics of him in his new surroundings
I will not give up and God will not either.Good pictures.when you need me just let me know,I will help in any way I can.God bless you both.I hope Levi's body will respond to all the new treatments And that is great about his wieght ,he is getting big now,and that is wonderful.I love you all .Get some rest and remeber God isn't finish yet.Even the negative ,praise God for one more day with him.We walk by faith not by sight.
ReplyDeleteAs we have said in the past, we are continuously praying for all three of you. For our God is "The Creator", so what better hands to have Baby Levi in than those of "The Creator" himself! He is up to 4lbs. 2oz.! That is awesome!! To God be the Glory! Believe us when we tell you that this is strengthening your bond with God as well as your bond with one another. When times are tough we're closer to God and one another. Trent this has made you grow up quickly and you are so much wiser because of all that you have been thru. In everything there is a blessing. You must keep your focus on that and be AWARE of the blessings. Keep the FAITH!
ReplyDeleteLove & Prayers,
Wayne & Sandra Dew