Month 2_Day 25 - Long Day

I will try to get back to normal soon. Its so much different here as we are trying to adjust. It looks like we will be here a little while. Levi will not be having surgery this week. It will be more of a wait and see approach. He had his ventrical tapped tonight and 20cc of fluid was removed. This should relieve any a pressure and hopefully start some good progession. He handled it well and was able to stay on his same O2 requirement. The big test is whether the fluid builds back up. If it does, how quickly does it take for him to become symptematic again? If its slow he could just have another tap later. If its quick they could consider permanent hardware of some kind. We will be here until his neuro issues are resolved and then we will get transfered back. It all depends on Levi how long that takes.

We arrived to a surprise this morning as Levi was back on cpap again. He had  little of a rough night. The big thing seems to be a difference of practice. UNC doesnt put babies on nasal cannula on the flow he was requiring. He is now on something they call bubble cpap. It seems to be very easy on his lungs. The nurse said since switching to these machines a couple of years ago it has really changed the way that chronic babies like Levi operate. They seem to handle it much better and alot of times go to room air instead of nasal cannula. Its really a big change for us adjusting to everything. All in all we do believe 100% after day one this is where Levi needs to be to get over the hump. Once he does we can't wait to get back to our friends at NHRMC though.

Please pray for the tap to be effective and the fluid to not back up again. Please pray for Levi to continue gaining weight and to progress on the cpap.