Month 2_Day 17 - No Road Trip - Eye Surgery

Its hard to put into words the roller coaster of emotion we have been on today. We woke up fully packed and ready to head to Chapel Hill. The trip was was to see a neurosurgeon about possible surgery to relieve pressure on his brain from fluid. Instead we woke to a call that Levi needed emergency laser eye surgery. He actually missed his follow up exam last week due to a rough day. This put him at 3 weeks since the original exam. Apparently 3 weeks makes a huge difference. His eyes started developing something called ROP. He was already at stage three. This required immediate intervention to correct traction on his retina. Basically he was gonna have detached retinas if something wasn't done. Lasers were used to blast away scar tissue to relieve the traction. Its about a 90% success rate but Sometimes they even need a second round. If this doesn't work he will need actual surgery. This is scary because it can cause blindness if left untreated. So the Chapel Hill trip is still going to happen so we will keep you posted. We are in a holding pattern.

Levi had to go on the ventilator for the procedure. He is currently off of it and back on the NIV mask. The plan is to try and get him back on the nasal cannula by tomorrow. Please pray! Please pray that his eyes will be healed from the procedure today. Pray that he will retain his vision or some form of it. Pray for the fluid in his head to not cause issues. Pray for no infections. Pray for patience for us as we live minute by minute.