Month 2_Day 2 - Huge Day

Phil 4 ⁴ Rejoice in the Lord always. Again I will say, rejoice!

Yes I know that he could take steps backward. Right now though we are very excited. We have been rejoicing every day that Levi is even here with us. Today the joy is just overflowing. Rollercoaster ride doesn't fully explain the extreme changes in emotion you can have in here. The lows are pretty low but the great thing is the highs are through the roof. God has poured out his love on us in so many ways. We rejoice in Him. I am supposed to say it again I think...we rejoice in Him!

Levi is again off of the vent. So far he is doing great. His blood gas test was good earlier which is the gauge I guess for how he is doing. He is on about the same settings as he was before except for no tube. He is wearing a mask again so he doesn't love that. Its the Non invasive mask. He can still get back up breaths if he needs them. The next step is to go on the CPAP mask in a couple of days if he does well. Another big step today was to pull out his IV line. He has gotten to a level with his milk that he isn't getting fluids anymore. This is huge because with each line he gets out the risk of infection goes down. What a great day! Let's pray for no setbacks. We really would love to see him progress forward to getting out of here. Thats still a good time off but we are looking foward to it.

For my prayer warriors

 

Levi - No Vent! Progress from Non invasive mask to the CPAP. Tolerate feedings. No infections. No swelling.

Anjie - Rest here at the hospital. She is sleeping here tonight to see Levi through.

Trent - Rest at home & peace of mind

Month 2_Day 1 - One Month Old

Romans 12 ¹² rejoicing in hope, patient in tribulation, continuing steadfastly in prayer;

Please continue to pray with us. Its been a month now. I never thought I would count Levi's B-day in months but here I am. I am really just counting it in days. Of course we should celebrate this achievment though. One month ago Levi was born and I thought there was no way he would live. That may sound terrible to some but I knew nothing about preemies. It also shows a lack of faith on my part I know. Now through strong prayer support Levi has beaten the odds. He is a long way from being out of the woods. I still must give thanks that he has lived this long. Lets just keep praying and giving God thanks for every day. The winds of the storm continue to blow but our house can't be taken down. No matter what we will still proclaim victory.

Levi gave us quite a scare tonight. He had a mucus plug in his vent tube. It took a little while to figure out what was happening. He turned white as a ghost on us and his oxygen saturation dropped from the 90s to the 30s. He came through it just fine once the clog was suctioned out. I have to admit being the one who is normally not shaken. I was scared for his life. This was just another reminder of how delicate life is.

Other than that he had a quiet day. He is getting extubated tomorrow. The doctor wanted to give him one more day and plan out the attack. They think this time will be it but no promises. This will happen around 10 am so please join us in praying. Levi had his feeds increased again. He is getting closer to getting off of the IV fluids. He is no longer getting lipids because he is getting enough fat from her milk.

For my prayer warriors

Levi - To stay off the vent. No infections. Continue to tolerate the milk. No swelling.

Trent & Anjie - peace & rest