No Luck Yet

I really wish I had good news to report. We have tried to remain hopeful during this whole process. We just can't seem to make a ton of progress on Levi's more major issues. The Doctors remain hopeful that he will just grow out of it all. That is not what you want to hear as a parent. You go to specialist looking for solutions. The truth is these are complicated issues Levi has. 

The reflux remains about the same. His last GI visit they decided to increase his medications again. I don't know if we see an improvement. A really good day is Levi not throwing up at all. The worst days now don't seem as bad though so maybe he is making some progress. 

The seizure treatment started about 6 weeks ago now. I don't believe we have seen any large improvement. His medication for this was recently also increased with no luck so far. Levi has woken up the past week straight in the middle of the night having an episode. After wards he just wants to play and it is very exhausting  for us. He still has an episode every morning and after every nap. So here is the new plan of action. We increased his current med and in about one week we will add another med on top of that. We will try that for two weeks. If at that time there is no improvement then we have no choice but to try steroid treatments. This is not the route we wanted to go. These treatments should be very effective but they also come with major side effects. With Levi's history the last thing he needs is more medical problems. The good news is these treatments have proven very effective. The negative is that if the seizures do return after two rounds then we have to stop and we are out of options. This is starting to feel like a hopeless situation. It is not easy to swallow that your child may end up just having to live with this type of condition.

I really hate to give this type of bad report. Believe me there is plenty in Levi's life to be thankful for. The reason I wrote this the way I did is to try and be very transparent about the situation. We are asking for you guys to join us in prayer over the next three weeks as we try this newest treatment. Our prayer is to see Levi respond well and not need steroid treatments. We are praying that the seizures will stop or minimize to a manageable level. 

Levi in the ball pit.

Our friend summer took these for Christmas.