ACTH THERAPY/HAPPY BIRTHDAY LEVI

Today is Levi's birthday. He turns two today. We are so grateful for the blessing of the gift he is to us. Levi is the toughest most inspirational person I have ever met. Many of us draw inspiration from different people overcoming all kinds of obstacles. Anjie and I are so blessed that in our lives that person lives in our house. He makes us smile every single day with his infectious happiness. He has fought so hard for his own life that many everyday struggles no longer seem relevant to us. Please join us in giving all of the credit to his life and story to God Himself. He is the giver and sustain-er of everyone of our lives. We may never understand why Levi had to bear this burden but what we do know is God has a plan for him. We are so anxious to find out the whole revelation of that one day. Just think in some states we could have made the choice to abort Levi at his gestation instead of allowing him his right to prove himself. Its sad our nation thinks that is OK but I guess that's a whole side issue for another time.

On a sadder note Levi is right in the middle of another fight. As I have written already this condition of infantile spasms is very bad. This is a giant our family is currently facing. We are hopeful still to get them stopped. We believe if so we are giving Levi a good chance to speed back up his development. We made the choice to go aggressive with the treatment at this time. The choice we made is to immediately start Levi on ACTH therapy. You can read about it here Basics of ACTH therapy 

 Basically its a high dose steroid treatment that when effective has been shown to wipe out the spasms. The treatment does come with a high cost. The side effects can be very taxing. It also causes immune suppression which means we won't be taking Levi anywhere for the duration of the treatment.  The doctor said we could take him out but not around sick people, We realize this time of year that is virtually impossible so we are choosing to be conservative. We expect this treatment will last about 4-6 weeks beginning tomorrow. Anjie will give Levi a shot each day. As usual we ask for your prayers. We are praying specifically that the spasms will stop and the side effects will be minimal. Please pray for Anjie and I to have patience and strength throughout this. I will try to keep the blog up to date as we move forward. 

Levi is getting stronger in his sitting. Check him out in his Cam Newton jersey.