Today was pretty rough. Levi seemed settled this morning early but as the day went on the pain really ramped up. The only thing we could do was keep asking what meds he was allowed to have until we exhausted all the options. Its really difficult for us as parents to make these decisions on what is right. The nurses and doctors are doing a fine job at empowering us and giving us advice. In the end we just try and do what we think is best and hope that we aren't allowing him to suffer too much. At one point he screamed and writhed for about 20 min until we had no choice but to give him morphine to calm him enough to rest.
This evening was definitely better. He actually wanted out of the bed a couple of times. Anjie held him in a chair some and he spent time in his wheel chair watching youtube kids videos haha. Whatever he wants right now we will pretty much do. We still have no idea when we will go home. I think he has to be off O2 overnight and not take meds like morphine for sure. We are praying for rest for all of us tonight and hopefully staying off the O2.
Thanks for all the many contacts and prayers over the last two days. We can't answer them all but we do read and appreciate them!!!
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