This is just a quick drop in to let everyone that's still checking in know what is going on. One of the updates I gave last time was about Levi's re-flux. This issue is not resolving itself on its own like the Doctors had hoped. It may have even gotten worse. He is in pain everyday even if he doesn't vomit. Most days he does vomit 2-4 times which as you can imagine is rough on a baby. Every time Levi wakes up from a nap he has a re-flux fit. Its very hard to get him to keep his food down at these times. Many nights when we put him to bed he will wake up a little while later screaming in pain from re-flux. This issue is also stunting his physical development preventing him from being able to do much floor play time at all. When he has food in his stomach he has to sit upright in a chair. I tell you all of this to ask for prayers specifically on this issue. We have a specialist appointment in Chapel Hill on June 27th to talk specifically about this issue and try and find him some relief. So far nothing we have tried helps including medications. We are praying for this to be dealt with using medications but we are now open to surgery if that's and option. At this appointment Levi will have an upper GI study done and then possibly will be scheduled for an endoscopy on a later date. I will be sure to update you next week but like I said...Please Pray!
As always we just keep taking as many pictures as possible of Levi. I don't think when he gets older he will have any trouble piecing together his entire childhood through photos.
I have been following your blog from the beginning but I don't think I have ever left a comment. My little one had awful reflux when he was little and ended up needing a fundoplication surgery to correct it after meds didn't work. Praying that you guys can find the perfect fix for your little guy. Such a handsome boy and I love his beautiful curls.
ReplyDeleteYou three are in my prayers every night. I hope that helps you with everything you have to go thru. Don't give up hope! Always climb over your brick walls or blow them up! You have the most beautiful child. xoxo
ReplyDelete