New Plan of Action

Just a real quick update. Yesterday we had a feeding eval, saw a gastro specialist and met with a nutritionist. The plan that we came out with is to switch formulas to something synthetic that is considered pre-digested. It also doesnt have milk proteins which Levi doesnt seem to digest well. We also are adding a new medicine that will hopefully speed up his digestion which should help add time where he has an empty enough stomach to play more. We also are now getting a referral for a speech therapist to start working specifically on a medically based approach to feeding which will hopefully start getting him back to eating baby food and eventually solids. We are optimistic that this will help but it may take a while to see if that is so. At least its new things to try because clearly what we were doing wasnt working. We also are scheduling a GI study here at New Hanover. We are possibly headed towards an endoscopy which would require sedation on possibly on over night stay in the hospital if these solutions dont help. Surgery was part of the discussion if the things we are trying now dont work we will have to consider it down the road. Thanks for your prayers. I will try and post a report back once we give this time to work itself out.

Trent, Anjie and Levi  

Begging For Help

This is just a quick drop in to let everyone that's still checking in know what is going on. One of the updates I gave last time was about Levi's re-flux. This issue is not resolving itself on its own like the Doctors had hoped. It may have even gotten worse. He is in pain everyday even if he doesn't vomit. Most days he does vomit 2-4 times which as you can imagine is rough on a baby. Every time Levi wakes up from a nap he has a re-flux fit. Its very hard to get him to keep his food down at these times. Many nights when we put him to bed he will wake up a little while later screaming in pain from re-flux. This issue is also stunting his physical development preventing him from being able to do much floor play time at all. When he has food in his stomach he has to sit upright in a chair. I tell you all of this to ask for prayers specifically on this issue. We have a specialist appointment in Chapel Hill on June 27th to talk specifically about this issue and try and find him some relief. So far nothing we have tried helps including medications. We are praying for this to be dealt with using medications but we are now open to surgery if that's and option. At this appointment Levi will have an upper GI study done and then possibly will be scheduled for an endoscopy on a later date. I will be sure to update you next week but like I said...Please Pray!

As always we just keep taking as many pictures as possible of Levi. I don't think when he gets older he will have any trouble piecing together his entire childhood through photos.