Hurdles

This journey has all been about hurdles. Levi has slowly worked his way over many of them one by one. He has a couple of more to go before he can go home. Obviously he has to stay off of oxygen but so far he is doing really well with that. Levi passed his swallow study today meaning that he was able to swallow a thicker mixture of milk down without aspirating. He is now getting to take the bottle again. THey will be slowly working with him to take all of his feeds by the bottle. He must prove he can do that or else he will need a G-tube to get home. Levi also has to have a hernia repaired before he can go home. Please pray specifically for these things and we will keep you posted.



Amazing Day

After 129 days on oxygen support Levi just spent his first day off of oxygen. He is doing really well without it and seems more comfortable. He has his swallow study tomorrow and we will find out if he can start back with a bottle. If not we will probably have to talk about a G-tube so he can come home. If so he just has to learn to eat so we can go home. Please pray with us that his airway will remain open and that he will pass his swallow study. We are still just so blown away how far he has come from his 1-9 birth weight. Levi has a long way to go but we still believe God has big plans for Levi. We are so thankful that He spared Levi's life.

Welcome Home

We did make it home late this afternoon. Levi is actually doing very well. He is on a much lower flow on his oxygen and his stridor is less. He got settled back in to his original room that he started in. We hope he gets to finish out his NICU journey there. He even got a special welcome home on his wall.



No Room at the Inn - Day 2

There is still no room at NH for Levi. This is obviouly very frustrating to us. We were told they would make space for him but now we are very unsure when it will happen. Please pray for things to open up. We could complain more but our hearts our burdened for another family today.

The Mayo family just lost their son Zack. Please watch this video to learn about his story and say a prayer for Zack's whole family. Especially pray for his Mom, Dad & brother. Anjie and I have seen alot of pain this year but I can't imagine what they are feeling right now.



No Room at the Inn

So I really want to complain but I realize that I shouldn't. Our patience just keeps getting tested more and more. Duke was prepared to send him back today but NH didnt have staff or beds to take him back. We were definately disappointed to say the least. So please pray for everything to work out for tomorrow. The wonderful thing is that we are staying in a great home. We have been taken care of by some people that we had never met and God  orchestrated all of it. He definately is watching out for us. We are so blessed that He loves us so much. The hard part is staying obedient when things dont go as we think they should. He is trying to teach us to relax and submit to His will.

Great News

We got a wonderful phone call this evening on the way back from eating. It was Dr. Toth the surgeon that repaired his eye. She had just examined him and his eye looked excellent. It looks much better than expected and much better than most babies that have this surgery in her words. She said he should not need any other surgeries right now and they will just watch closely as he grows. What a great answer to prayer! So we should be headed back as early as tomorrow afternoon. Things just have to line up with the transfer and New Hanover. Thanks again for praying.

Recovery Day 2

Levi did come off of the vent today. He is doing well so far. The only odd thing is that his resting heart rate is much lower than normal. We arent real sure whats causing that. He is breathing much easier though with the steroids on board. Hopefully tomorrow everything will be normal and we can hold him again. We didnt see anyone from the eye team today. The big thing is the one week check though so please pray that will be good and we can go back.