Home Safe

Sorry for the delay. We have been trying to get ourselves back to normal after not really sleeping much for two days. Levi's surgery was a success. The two larger cysts were removed that could have been a high risk to swell this winter. Hopefully this is the last time they will have to do that. We will go back sometime next year for a follow up scope and they will keep a close watch until hes preschool age. Levi is pretty tough as we know. He slept all day Friday and then Sat morn he was back to normal. We took this harder than he did I believe because they stuck us in a short stay pod overnight. There was basically no way to sleep more than 30 min at a time. Thanks for the prayers and support. I will try to keep the blog updated with any new developments. We appreciate those that are still following along with his journey.

Trent, Anjie and Levi

Surgery Tomorrow

Just a quick update on what's going on with our family. Levi is scheduled for surgery tomorrow morning. We don't have an exact time yet. It should be in the morning. This will be the surgery I mentioned before to remove cysts and scarring from his airway caused by being on the ventilator for so long. There is also a discussion about going ahead and taking his tonsils while they are in there. Levi isn't of age for that yet but if they are still enlarged we may not have a choice. I can't tell you a lot about the surgery other than it is inpatient and we are hoping he gets to go home this weekend. I will be sure to post a recovery update at some point tomorrow. Please be in prayer for us. For Levi's recovery and for our nerves/rest as we care for him afterwards. 

I promised an update on his reflux issues as well. The new medicine did seem to help. Levis not throwing up as much after his naps. This week has been a little rough but before that he was actually down to about one small throw up a day. The medicine can be slowly increased and we are about at half the max dose right now. There have been no negative affects so we are cautiously optimistic that we will hit a point that will stabilize this issue. There is still the constant watch out for him refluxing. He still has the Sandifer's syndrome where he has spasms from the severe episodes. I am not sure if any of that is going away soon but at least the reduced vomiting is a good step. Please keep praying for this issue.