New Pics

I guess at this point we cant help but take tons of pictures of Levi's new smile. There has actually been a decent amount of development since the last update. Levi has started smiling much more frequently. He is cooing and even giggling a little when you get him excited. I know thats what babys do but for Levi we are hanging on every little sign that the brain bleed didnt have a major affect on his neuro status. Levi has also started mimicking one noise. So if we make that noise he will make it back at us. His feedings are getting easier which is a blessing because they have been a nightmare for alot of the time. Thursday Levi makes his bimonthly trip to Chapelhill. Please pray for safety and good reports from the neuro team. Please also pray for Anjie and I. The stress of this past year has really gotten to us. We really dont have many people we can leave him with so we dont get much alone time. I guess this is normal for a family with young kids. I guess its just finally catching up to us.

A Beautiful Smile!

First off all I apologize for the lack of updates. I never meant to let it slip that long. I have been worn down and we are of course busy with Levi about every second he is awake. A huge blessing we have seen in the last couple of weeks came in the form of something so simple as a smile. This may not seem huge but it is for us. After seeing Levi suffer through so much pain during his short little life its an amazing feeling to see that little smile start to develop. It also means larger things in the scheme of Levi's development. Levi not only has started smiling but also started smiling in response to us. This means a lot because it shows neuro development is happening. If you listen really close you can even here a little giggle when he gets really excited. He has also started picking up rings and bringing them to his mouth.


Other things to note are his Physical therapy is going well. We are seeing some big differences in him do to that work. Levi has seen the eye doctor and pulmanologist (lung) since the last update. The eye doc cant tell a ton right now. He thinks Levi does have vision but who know how much. He goes back in Nov. We are watching that he keeps developing and that his eye motor control gets better as he grows. If not he may get glasses soon. The motor control can be corrected by surgery but we hope that does not need to happen. The lung doctor warned us that he should have been off of O2. This means that he may have a more serious case than originally thought.   He seemed to think this was due to the airway and not lungs. Either way its a wait and see approach for that too. He will continue to see that doc and if no improvement happens they will take a look with a scope to rule out surgery on Levi's airway. Please pray that Levi need no more surgery! He is not out of the woods yet. 


With cold and flu season coming up we will have to be even more careful. Please pray that Levi doesnt catch anything. If he does his airway is very unstable and he is at high risk for hospitalization.